Wednesday, August 6, 2014

Deafness and Hearing Loss Demographics in the Church (Catholic deaf and hard of hearing)- Catholics with Hearing Loss: Captioning the Catholic Mass






                           Deafness and Hearing Loss


                         Demographics in the Church 


                     (Catholic deaf and hard of hearing)



"It's not enough to know Christ, we must bring him to everyone!" - Pope St. John Paul II





Who are the deaf and hard of hearing? 

How many deaf people are there in the USA?

What does 'deaf' mean?

How many 'deaf' Catholics are there?

Are they attending Mass?





Captioning, Sign Language and Audio loops are the three most common communication access used by the deaf and hard of hearing in secular business, education and entertainment settings.  It would be nice if it was also being provided in churches even though the church is ADA exempt.  The hearing loss and deafness population is diverse so all three most common communication   access needs to be in place.

About 10 percent estimated of the hearing loss population benefit from sign language (3 percent are native/primary users and 7 percent estimate are acquired/bilingual for a total estimate of 10 percent ), about 40 to 60 percent estimated of the hearing loss population benefit from Captioning, and about 70 to 80 percent estimated  can benefit from Audio Loops (assuming they are wearing hearing aids and cochlear implants with T coils so this is more in theory). However in reality; 1 in 5 Americans with hearing loss who can benefit from a  hearing aid wear one.  1 in 4 deaf adult Americans who can benefit from a cochlear implant wear a cochlear implant. 25 percent of hearing aids do not have T coils in them.  Many people with more severe and profound hearing losses who do wear hearing aids and do have T coils in them often find the Audio Induction loops not reliable for them or 'strong' enough. Captioning can also cover all these groups and thereby provide effective communication  access.  Technically though any one who can read  (receptive) and speak (expressive) can benefit from Captioning so real time captioning can cover a wide user population within the spectrum of hearing loss.

Think those with mild and moderate hearing loss who most benefit from audio induction loops are wearing  hearing aids?  According to this:


"Only 14% of older adults with hearing loss use

 hearing aids, according to estimates from a 

nationwide survey.

The proportion dropped to fewer than 4% of people

 with mild hearing loss across all age decades and 

to fewer than 5% of adults ages 50 to 59,

 irrespective of the severity of hearing loss."

_______________________________________________________________________________________________________

This {real time captioning} technology is primarily used by people who are late-deafened, oral deaf, hard-of-hearing,or have cochlear implants. Culturally deaf individuals also make use of CART in certain situations. " (Source: http://www.everyonecommunicates.org/methods/captioning.html)



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"An obvious benefit of closed captioning is to allow everyone to have an equal opportunity to participate in and enjoy the benefits of a service, program or activity." 

____________________________________________________________________________________________________


"A growing number of churches, synagogues 

and other places of worship are adopting 

closed captioning for hearing-impaired 

congregants." (Source:  http://www.stenotype.edu/news/stenographer-goes-church/#sthash.5tWSYgfx.dpuf)



________________________________________________________________________________________

This is an interesting link by Steve Barber and his research, and 'a discussion' of the varying degrees of Hearing Loss.  While the research data is interesting, I don't agree with 'the discussion' entirely, but like he said, the word deaf and hearing loss (and all the related names) can mean different things to different people, including how one may adapt or respond to hearing loss and social identification which affects your choice and definition of varying words like deaf, Deaf, hearing loss, hard of hearing etc.  So I will add in my own comments and discussion as well.  I love the Pie shape of the demographics he created that provides a nice visual representation and it gives you an idea of the Hearing loss population.

As to my comments on it, I like to bring up several thoughts expanding  on Steve Barber's research 'pie' as well as explaining the cultural differences that affect communication choices among the diverse deaf and hard of hearing.  

For the physically deaf and hard of hearing it is about communication access with their own social -linguistic culture -usually English in the USA and having access to that. For the culturally Deaf  it is about a language within their social -linguistic framework and having access to it:

The culturally 'Deaf' are not necessarily physically deaf,

 although many are. Why?


In reality, many culturally Deaf ('Deaf' as in capital D) who use American  Sign Language actually have a range of hearing loss from mild to profound and not necessarily completely 'deaf',  on an audiogram that is. For example, a child with a mild hearing loss growing up in a culturally Deaf ('Deaf') family or joined at a very young age whose native language is American Sign Language could be called 'Deaf' from a social point of view but on an audiogram may not be 'deaf' (aka mild hearing loss).    Capital D in Deaf - Deaf culture does not mean 'don't hear at all' .  Its about a language and culture. 




There is no real standardized legal definition of the word 'deaf' that I know of so it could mean many things depending on the person.  Many audiologists, I believe, will consider those with severe and profound hearing loss to be 'deaf' (especially those indicated on an audiogram with profound hearing loss, 90+ pure tone average or more).  I am not aware of any defining definition of what being 'legally deaf'  is either so I don't believe there is  a 'right or wrong' answer, just a discussion of varying names and meanings when talking about the deaf and hard of hearing.

Folks in the mainstream are not aware of this but  you can have some culturally Deaf ('Deaf/ASL') people have a mild or moderate hearing loss as well as severe or profound hearing loss. That's because the meaning of the word 'deaf' is broad spectrum. In this case, Deaf (as in Capital D) define 'Deaf' as a social-language group, not based on audiograms.  How would you define deaf?  That depends on who you ask.  How would you define hard of hearing?  That would also depend on who you ask.

Sign language for the physically deaf who are not culturally Deaf:  

As to learning sign language for other hearing loss/deafness groups (not culturally Deaf ('Deaf'), while a beautiful foreign language, it is often not practical for many if their social identity is of being with others of their own native language (usually English in the USA) and so the people they are around with the most (family, spouse, friends, neighbors, work, and community,  church friends) may not know sign language and the idea of learning a language is to COMMUNICATE with others - that's the key, and especially of their own social network - their own native English language, the world they live in, at least for those people.  Deafness for them is about communication, not a particular 'culture' language foreign to them. They want access to their own native English language (usually in the USA, although Spanish is gaining popularity) because the world they live in uses English (or Spanish).  

For the culturally Deaf it is about a particular language; sign language and having access to that within their cultural framework.  For the physically deaf, it is about communication in their native language (usually English in the USA, and sometimes Spanish) and having access to that in real time verbatim for those with severe or profound hearing losses, the late deaf and the oral deaf. For the  hard of hearing (mild and moderate hearing losses) it is about access with audio induction loops.


American Sign language is not English in signs. It has it's own grammar and syntax. It's a foreign language. It is certainly beautiful, but for many it is limited in the world they live in, the world of the spoken language, usually English in the USA.  Many deaf and hard of hearing people want access to their own native English language, especially the late deaf, the oral deaf and those with severe and profound hearing loss.  Real time captioning provides equal and effective communication much like interpretation does because it is basically a verbatim translation of the spoken language in real time telling  you exactly what the speaker said in the speaker's own words. It is like having an interpreter but in the same language.

From my own personal experience as well as being with many others, often the late deaf, oral deaf, oral hard of hearing, late hard of hearing  have spent some time learning sign language (and often in  many cases having to learn it because their own  communication access is being denied to them with only sign language being available or allowed) , only to find out they don't have any one to maintain or practice the language with because their work, or community, or friends or spouse or family do not know sign language.   I've been in many situations where they would not provide speech to text to the majority of the deaf and hard of hearing who use it for effective communication access , but allow sign language.  

Often many will quickly forget what  sign language they learned, having not used it regularly,  or find themselves not fluent in it because it takes a  committed 5 years average for fluency in a foreign language. They often find it not a practical language for their needs when their social network is English not American Sign Language.  The English language (usually in the USA) is their native social, culture and linguistic heritage.  They generally prefer having access to the community around them  in their own native English language and real time captioning translation in verbatim provides that.   They want access to their own native language of English in verbatim real time for those with more severe losses and audio induction loops for the mild and moderate losses.  Ninety percent of the deaf and hard of hearing do not know sign language.  It is the culturally Deaf ('Deaf') who use sign language and they have a rich social network of fellow signers to communicate the language within a social, cultural and linguistic community.  Sign language is an appropriate accommodation for the culturally Deaf. 

While certainly  hearing loss folks can get a sign language  interpreter  after learning the language (it takes years for fluency and mastery because American sign language is not English in signs with its own grammar and syntax), they can ALSO more easily get a CART or Remote CART 'interpreter' to translate the spoken words of English into verbatim, avoiding the nuances of a foreign language, and providing immediate communication access in verbatim  interpretation of their own native language, especially when their social network is in English, and if the Mass is being done in English.    



CART (real time captioning) is a valid effective communication access under ADA.  It is a very appropriate accommodation for many people with hearing loss.  Real time captioning is generally used by the late deaf, the oral deaf, severe to profound hearing loss and the hard of hearing (mild to moderate hearing loss) in the secular world of business, education and entertainment. Captioning is the language of many.  People who can read and speak English find captioning a very effective communication access.   There are many diverse communication access methods, and the three common ones for equal and effective communication access is Captioning, Sign Language and Audio loops. 


Learning the language of your Neighbors:

Back to learning American Sign Language; In order for folks with hearing loss to maintain the sign language they just learned if one is learning it,  they have to get others they know to also learn the language or make a social shift identity (in full or part),  and immerse themselves into another culture, language and world - the Capital 'D' Deaf community of American Sign Language.  That would be like learning Chinese and then expecting everyone around you that you know (work, community, neighbors, friends, spouse etc) to learn Chinese also.  You either get everyone else to learn Chinese also, or you start hanging out with the Chinese in order to use the language.  

Of course one can always learn a few words with each other but it generally is not 'effective' communication access without fluency and mastery of a language when getting into the depth of understanding more complicated levels of communication that go beyond communicating where the bathroom is, what time is it and where the bus stop is for example.  Learning a language is only good if others know it, or if you can use it with others and that is defined by who you will be around with.  Therefore, many people with hearing loss generally prefer having access to their own cultural and linguistic world they live in because that is what they are around with and they should have communication access to it and real time captioning provides that access by translating spoken words of English into real time verbatim of English.   If they can read, they read the captioning.  If they are verbal, they can respond by speaking.  CART is suitable for those who can read and speak.  

   Audio loops are another means of access for those with hearing loss providing it works for them. Generally the severe and profound hearing loss folks benefit from CART or real time captioning and the mild and moderate hearing loss folks benefit from Audio loops. 

Sign language is a very beautiful language and that should be provided as a valid communication access for the culturally Deaf.  However, it is not the language of the majority of the deaf and  hard of hearing and they should be provided appropriate, equal and effective communication access such as Captioning and Audio loops, depending on which is effective for them. Why do I say this?  Because the mainstream think all the deaf and hard of hearing use sign language. In reality, the majority do not know it and speak English (usually) in the USA.  We need Universal Access  that reflects the diversity of the deaf and hard of hearing population, generally being Captioning, Sign language and Audio Loops.



Demographically speaking, it is an interesting discussion giving you an idea of the breakdown of The Hearing Loss Pie:

According to this research at the above link (The Hearing Loss Pie); 24 Percent of the Hearing Loss population have a Severe Hearing Loss, 10 Percent of the Hearing Loss population have a Profound Hearing Loss, 3 Percent are Oral deaf, and 30 Percent of the Hearing Loss population have a Moderate Hearing Loss.  30 Percent of the Hearing Loss population have a Mild Hearing Loss.  The culturally Deaf whose primary language is ASL is 3 percent of the hearing loss population. A number of sources indicate about 10 percent of the hearing loss population uses sign language (estimated 3 percent native, 7 percent acquired as a second language and therefore bilingual).




However, it is not all cut neatly into a Pie.   


Many have combined ranges on the audiogram that display a Moderate to Severe Loss, or a Severe to Profound Loss etc.  So depending on where you are on the Audiogram, this will affect your ability to be able to benefit from Audio Loops, as well as how successful you are able to make use of powerful hearing aids and cochlear implants with the T coil of the Audio Loop.  Several sources indicate that 75 percent of hearing aids have T coils, as well as the fact that not everyone is wearing hearing aids even if they can benefit from one (1 out of 5 who can benefit from a hearing aid actually wear a hearing aid according to several sources).   This means there is a large number of people who can not benefit from audio loops because they are not wearing hearing aids, or the hearing aids don't have T coil in them (25 percent don't have them).   Not only that, many people who do wear hearing aids and do have T coils in the hearing aids find the audio loops not reliable or 'strong' enough for them if they have a severe or profound hearing loss. I  know because I am one of them.  I wear hearing aids.  I have T coils in my hearing aids.  I need Captioning.  Audio loops main 'effective communication' target are the mild and moderate hearing loss folks generally.  The ones with severe and profound hearing loss may or may not benefit from Audio Loops. It all depends on the person.

Cochlear implants also have T coils built in them.  Not everyone is wearing them either. Several sources indicate that about 1 in 4 severe to profound hearing loss or deaf adults get a Cochlear implant and about half of deaf children get Cochlear implants according to several sources.  

Generally speaking the Mild Hearing Loss, Mild to Moderate and Moderate can benefit from Audio Loops.  It all depends on the person and various dynamics (including how successful you are able to use hearing aids and cochlear implants (or if you even have a Cochlear implant or wearing a Hearing aid) once you get pass Moderate and start hitting into Severe.  Baby boomers are affecting the demographics and hearing loss will double by the year 2030 making the late deafened and late hard of hearing the FASTEST growing hearing loss population.  Every year this is climbing towards that projected double estimate of a rapidly growing hearing loss population.



Either way, a rough estimate of well more then

 half of the Hearing Loss Population can

 benefit from Captioning especially the late

 deaf, oral deaf, severe and profound hearing

 loss folks.  The Mild and Moderate Hearing

 loss folks tend to prefer Audio Loops but could

 also benefit from Captioning.  The culturally

 Deaf prefer Sign Language, however if they

 are bilingual and Sign Language is their

 second language they would most likely also

 benefit from Captioning as well if they feel

 comfortable with it.  Technically any one who

 can read and speak can use Captioning.

(Demographic source: http://www.nchearingloss.org/article_demographics.htm  )



As you can see, we are diverse.  A Universal Communication

 Access needs to be in place at Churches such as providing

Captioning, Sign Language and Audio Loops and not just one

 or the other.
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While this data is almost 10 years old and hearing loss demographics have sky rocketed to 48 million now (and counting) with aging baby boomers driving up the demographics,  it does give you an idea of hearing loss:  "  In a Better Hearing Institute survey published in 2005, 31 million people are currently estimated to suffer from hearing loss. Of those 31 million, 29 million people are hard of hearing and 2 million are deaf. And of those 2 million, 1.5 million are late-deafened (deafened after the acquisition of spoken language)…" (Source:  http://healthbridges.info/?p=333)  These people generally do not know sign language and can benefit from CART or real time captioning.

___________________________________________________________________



"The overwhelming majority of people categorized as deaf by the NHS and SIPP are perfectly fluent speakers of
English (or another spoken language) and did not experience any difficulty hearing until well
into adulthood (e.g., Blanchfield, Dunbar, Feldman, & Gardner, 1999; Mitchell, 2005). As a
consequence, most people who are audiologically deaf do not use sign language."

Source: 

 Draft manuscript accepted for publication in
Sign Language Studies, Volume 6, Number 3, 2006
How Many People Use ASL in the United States?
Why Estimates Need Updating􀀁
Ross E. Mitchell, Travas A. Young, Bellamie Bachleda,
and Michael A. Karchmer
Gallaudet Research Institute
Gallaudet University

___________________________________________________________________




Other Deaf/deaf/hearing loss

 Demographics :



Here is some stuff about the 

Hearing loss and deafness 

population:


You can be Deaf and not 'deaf' (aka mild hard of hearing) because the Deaf/ASL culture define Deaf as a cultural and linguistic worldview, not one necessarily based on one's audiogram.   In the research here http://research.gallaudet.edu/Demographics/factsheet.php/deaf-US.php#Q1  the reference is  to deaf in audiogram concepts, not culture and linguistic concepts.  Just saying one can't hear or understand speech or deaf in both ears doesn't mean the person uses sign language. They may or may not because the research is based on audiogram perceptions.   This includes those with severe and profound hearing loss, late deaf and oral deaf as well as culturally deaf because the stats do not define cultural and linguistic preferences. In other words, it only tells you who could be deaf but it doesn't tell you who uses sign language. On the other hand, there are many hard of hearing people who are 'Deaf' as a cultural and linguistic worldview even though their audiograms reflect mild and moderate  hearing loss.  If one wants to research the number of 'Deaf' (culturally speaking, that is those who use sign language) a different research would be needed, one that reflects the language user and not audiogram perceptions.




The mainstream do not understand the diverse

 meaning of the word 'deaf'.  There are people who 

call themselves Deaf and yet on an audiogram are not 

deaf. There are people who call themselves hard of 

hearing and yet on an audiogram they are deaf (aka 

severe to profound hearing loss,  generally 90+ pure 

tone average on an audiogram although there is no 

real 'legally deaf' definition that I know of).  The word 

deaf can mean physically deaf or it can mean 

culturally deaf which are two entirely different 

meanings.  However, there is no real standard legal 

definition of the word 'deaf' so it is a broad spectrum 

word, both in how one identifies themselves, as well 

as what appears on an audiogram.  The mainstream 

generally think the word deaf means 'can't hear at all 

and use sign language'.  In reality, many culturally

 Deaf people 

have varying degrees of hearing loss from mild to 

profound on an audiogram. In fact, the majority of 

deaf people who are physically deaf on an audiogram 

do not know sign language.






Deaf and deaf:  You can be Deaf and not 'deaf' (aka mild hard of hearing) because the Deaf/ASL culture define Deaf as a cultural and linguistic worldview, not one necessarily based on one's audiogram.   

"Members of the Deaf community may have hearing levels that range from profoundly deaf to slightly hard-of-hearing. But no members of the Deaf community are "hearing impaired." 


(Source:  http://www.colorado.edu/journals/standards/V5N2/AWARD/halpern2.html)



How many people are "Deaf" and how many use ASL?

Mitchell, Ross E., Travas A. Young, Bellamie Bachleda, and Michael A. Karchmer. 2006, in press. "How Many People Use ASL in the United States? Why Estimates Need Updating." Sign Language Studies, Vol. 6, No. 3.
" Nonetheless, if the proportion of deaf signers has remained roughly the same, then they would continue to number in the hundreds of thousands today (360,000 to 517,000). Please keep in mind that this final estimate is just that, an estimate (and a very rough one at that), and is not based on any new data."


That being said, 24 percent of the USA population is Catholic, so take 360,000 to 517,000 into that to determine the number of Catholics who use ASL (American Sign language) depending on which figure you want to use.

There are 48 million Americans with a hearing loss (of those only 360,000 to 517,000 know sign language if you use the data above) , 24 percent of Americans are Catholic, with an estimate of 12  million Catholics with a hearing loss, the majority of whom do not know sign language.   


The increase use of Cochlear implants for


 ALL ages will most likely be shifting

 demographics so updates will be needed.

  Aging baby boomers will and is shifting

 demographics since hearing loss is often

 associated with aging (which means a

 continuing increase in late onset deafness 

and hearing loss) so predicted 

demographics of the  hearing loss

 population will rise dramatically within the

 next decade .  


Only 4 to 10 percent of the deaf 

and hard of hearing population attends

 church (much lower than the average

 Catholic percentage who does not attend

 church) due to lack of access and being

unable to fully participate. I suspect at least

 a good portion of the ones who are

 attending have some kind of access. 


If a person with hearing loss is attending church, is

 there effective communication access in place 

for them? (Captioning for the late deaf, oral deaf and

 severe to profound hearing loss,  Sign Language for

 the

 culturally Deaf,   Audio 

Loops for the hard of hearing, being those with mild 

and moderate hearing loss) 


If not, how are they able to fully, consciously and

 actively participate according to Canon Law/Vatican

 II?

___________________________________________




The speech audiogram 'banana':  http://firstyears.org/lib/banana-chart.pdf


The above link is an example of what an audiogram looks like.

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The word deaf can mean:  


culturally Deaf ('Deaf'), late deaf, oral deaf, severe and profound hearing loss, hard of hearing (mild and moderate hearing loss), hearing loss, deafness, deafened, partially deaf , hearing impaired, and more. 




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Welcome !    See  http://www.catholicscomehome.org






Are They In Your Church?:  




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Some information about Cochlear

 Implants that I found in my research 

that may or may not impact 

demographics:


"As of December 2010, approximately 219,000 people worldwide have received cochlear implants; in the U.S., roughly 42,600 adults and 28,400 children are recipients.[1] The vast majority are in developed countries due to the high cost of the device, surgery and post-implantation therapy."  (Source: http://en.wikipedia.org/wiki/Cochlear_implant)

Update: 

"Children and adults who are deaf or severely hard-of-hearing can be fitted for cochlear implants. According to the Food and Drug Administration (FDA), as of December 2012, approximately 324,200 people worldwide have received implants. In the United States, roughly 58,000 adults and 38,000 children have received them." (Source: http://www.nidcd.nih.gov/health/hearing/pages/coch.aspx)



Who are getting Cochlear implants?: 

"More than half of all deaf children are now getting cochlear implants, and every year the number increases. One-in-four deaf adults also now have it, though it takes longer for adult brains to adapt to hearing sound."  (Source: http://www.npr.org/2012/04/08/150245885/cochlear-implants-redefine-what-it-means-to-be-deaf)

Gallaudet handling of the influx of non signers: http://seattletimes.com/html/nationworld/2016575015_gallaudet23.html




Cochlear Implant Research on children:  http://www.lsl.usu.edu/files/Geers-lang-skills.pdf


Cochlear Implants and children :  http://cochlearimplantonline.com/site/


Miss America and Cochlear implantshttp://www.drdonnica.com/celebrities/00006142.htm


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"In every local church and its community

there is a mission and ministry field that 

is often unrecognized, therefore 

neglected. The field is composed of 

children, women and men who are Deaf,

 late-deafened, {and oral deaf}, hard of 

hearing or deaf-blind.

(Source: http://www.umcd.org/Publications.htm).    

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You can use any figure you want above in regards to number of deaf in the USA (and subsets in the USA),  but don't forget that the total number of people who are deaf in the USA does not mean they are all Catholic.  24 percent of the USA population is Catholic so you take the total deaf population estimate in the USA  and work in 24 percent of that total to get the estimate number of deaf Catholics in the USA (and be careful which subset of the deaf you are estimating ..akaculturally deaf? deafness based on audiogram? late deaf?  and so forth) in the USA because not all deaf people (and those with severe to profound hearing loss and hard of hearing) know sign language.  

__________________________________________________________________





"This much larger group is routinely 

overlooked when 


we look at welcoming people with special


 needs into our 


local communities of faith. While a very 


small number of 


people who are physically deaf may be


 able to use an 

ASL interpreter, most cannot. "

( Source: http://www.disciples.org/GeneralAssembly/Business/1120/tabid/862/Default.aspx)




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For regional estimates (state/local) one would need the number of deaf/hearing loss population  plus the percentage of Catholics  in that state (some states have more Catholics like MA, and some states have less like TN).  The word 'deaf' does not equate to sign language so it is important in demographics to distinguish  'deaf' from an audiogram and physically deaf point of view (hearing loss/deafness) or 'Deaf' from a cultural/linguistic point of view (ASL/sign language), especially when the majority of the physically deaf do not know sign language simply because deafness increases with age and the older you are, the more likely your native language is the spoken one (usually English in the USA).  On the other hand, the younger you are (especially the born deaf), the more likely your native language might be ASL or bilingual, meaning knowing both sign language and English in the USA. I do not know the impact, if any, of children getting cochlear implants and if that shifts anything.  It is possible they are bilinguals -knowing both sign language and the spoken language or just using the spoken language.  I also do not know if the born deaf who are native sign users are also learning English and/or if they are bilingual or not.  But for this discussion, the emphasis is that the majority of the deaf do not know sign language simply because deafness increases with age so therefore the majority of the deaf do not know sign language and the aging baby boomers are driving the demographics  dramatically at this point in time.

Collectively as a group, only 10 percent of the deaf know sign language when you include the late deaf, oral deaf and those with severe and profound hearing loss, and the hard of hearing, and not just the culturally 'Deaf' simply because the majority of the deaf are not born deaf and many have socially identified themselves with the spoken language (English usually in the USA).   Deafness increases with age so therefore the majority of the deaf established their native language as the spoken one and do not know sign language.  The hard of hearing (mild and moderate hearing loss) could identify themselves as 'deaf' or 'Deaf' so getting exact demographics can be tricky especially with the diversity in how they identify themselves or how they define the word 'deaf'.  I have known many hard of hearing (mild and moderate hearing loss) people in my life who call themselves 'Deaf' with a Capital D because they associate with the cultural and linguistic community of American Sign Language so the culturally Deaf have a range of hearing loss on the audiogram spectrum and yet are 'Deaf'.  I have also known many people in my life who are deaf on an audiogram, and yet call themselves 'hard of hearing'.  Certainly the word 'deaf' and 'hard of hearing' can often mean social identification rather then what is actually on their audiograms.  It can also mean what actually appears on the audiogram as well.  

When using the Hearing Health Foundation figure of 48 million Americans with significant hearing loss to impact communication that amounts to an estimate of 12 million Catholics.  If they don't have access to the Mass, they are not able to fully participate.  Sign Language, Captioning and Audio loops can provide them effective communication access depending on which one works for them, as well as their cultural and linguistic social identity.  All of these communication access needs to be in place Universally in order to address the diversity of the deaf and hard of hearing population. There shouldn't be just one type of communication access at the Catholic Mass because the deaf and hard of hearing are very diverse. We need Captioning, Sign Language and Audio loops for equal and effective communication access to the Catholic Mass.  

The ADA laws identifies CART (real time captioning) as a valid and effective and equal communication access. The church is exempt from ADA laws however, but the fact still remains that many deaf and hard of hearing do not have equal and effective communication access to the Catholic Mass if Universal Access is not in place (Captioning, Sign Language and Audio Loops).  Even if the church can't afford Universal Access (Captioning, Sign Language, Audio loops) that fact still remains -many deaf and  hard of hearing do not have equal and effective communication access. Even if it is not in the budget, the fact still remains, they are not able to fully and actively participate in the liturgy celebration of the Mass.  Many sources indicate only 4 to 10 percent of people with ANY degree of hearing loss and deafness attend church simply because there is no communication access for them in order to fully and actively participate. So the fact remains, many people of varying degrees of hearing loss and deafness are unchurched - 90+ percent that is.  So if you don't see them in church, that explains a good bit for you. They are not there, or rather only 4 to 10 percent are there in church. You don't see them too much.

____________________________________________



The Deaf/deaf/HOH need Universal Access:  



"When designing a space or 

planning 

an event, we need to strive for 

universal access—so that all 

members of our communities can 

attend and participate. This means 

that, in addition to ramps and 

elevators, we need assistive 

listening technology like hearing 

loops and captions, and signage 

that makes it clear that the service 

is available. This is a goal that we 

can achieve, but in order to do so, 

we need to change the way we

 think about communication and 

hearing access. "


- See more at: http://agewisekin
gcounty.org/en/134/1/661/Too-Many-People-with-Hearing-Loss-Miss-Out.htm#sthash.em7Uhug6.nW91Nm7I.dpuf



_________________________________________________________________



"From infancy, many children with


hearing loss depend on hearing


 aids or 

cochlear implants to receive 


auditory 

information. Later, the language


 and 

educational development of


 children who 


are deaf or hard of hearing


 depend, in 


part, on access through


 accommodations


such as assistive listening devices


 and 

Computer Assisted Realtime


 Translation 


(CART).
 (Source: http://www.listeningandspokenlanguage.org/ )





My comment on this link source: This concept easily applies at churches and being able to understand and actively and fully participate at the Catholic Mass. 





_____________________________________________________________________________



"A longtime Bergen County resident and advocate for people 

with hearing loss, Romoff said one of the main obstacles was, 

and often still is, 

“ that the mainstream thinks sign language 

interpreters are what all people with hearing loss 

need, when the vast majority actually need assistive 

listening systems and captioning. So educating about 

needs has to occur first.” 

___________________________________________________



Hearing Loss Web:  http://web.archive.org/web/20140104151703/http://hearinglossweb.com/

Our Mission

"Hard of hearing, late deafened, and oral deaf 

Americans are unrecognized and underserved. They

 have not been successful at educating the public 


concerning their situation or at getting their

 needs met".
(Source: http://web.archive.org/web/20140104151703/http://hearinglossweb.com/)



__________________________________________________________________



" The majority of deaf and hard

 of 

hearing people 

are oral using spoken languages


 and 

know a little 

or no sign language to benefit


 from


interpreters, so signed events

 are still

 not “fully” 

inclusive, especially for those

 people."  (Source: http://audio-accessibility.com/news/2013/12/importance-of-quality-communication-access-no-waving-hands-or-auto-captioning/)

______________________________________________________



"The hard of hearing {and late deaf and oral deaf}  is 

almost a bigger audience than the {culturally} deaf, 

and they would benefit more from close captioning 

than signing, because many of them don't know sign 

language." 



____________________________________________________________________________________________



"While not all deaf or HOH understand ASL, captioning is generally the preferred method of communication for deaf and HOH." 

(Source: http://www.globalcaptionnetwork.com .  )

_______________________________________



"Can we all agree that achieving

 the 

genuine inclusion of deaf and

 hearing

 impaired people in society

 demands 

better than a one-size-fits-all 

approach to

 communication?"  (Source: http://therebuttal2.com/2010/07/27/1007/ -Tony Abrahams)

____________________________________________________________________________________________________________





This technology is primarily used by people who are late-deafened, oral deaf, hard-of-hearing,or have cochlear implants. Culturally deaf individuals also make use of CART in certain situations. " (Source: http://www.everyonecommunicates.org/methods/captioning.html)


______________________________________________________________


Many people who are Deaf or hard of hearing grew up hearing or were educated in an “oral tradition”, and do not know sign language. Not all Deaf or hard of hearing people find assistive listening devices to be effective. For these individuals, captioning may provide an effective way of communication – seeing what is said. "


_____________________________________________________________


“CART is fast becoming one of the most requested services for late–deafened adults and individuals with little or no sign language acquisition, and it has gained acceptance with and become a preference for many Deaf individuals in schools and workplace settings"  



_______________________________________________________________



Deafness does not equate to sign language because the majority of the deaf and hard of hearing do not know sign language and speak English as their native social cultural and linguistic language (usually in the USA). Why do I emphasize this?  Because it affects communication access.  Raising awareness of the diverse deaf and hard of hearing population allows more Universal Access for all because 
often the mainstream think all the deaf and hard of hearing use sign language. Universal Access needs to consider Captioning, Sign Language and Audio Loops in order to provide equal and effective communication access for the deaf
and hard of hearing.


____________________________________




Myths about the hard of hearing

 {and 

severe to profound hearing loss,

 oral 

deaf and late deaf} 



______________________________________




“There are all kinds of accommodations they
 make for
 other disabilities, but very few 
accommodations for
 hearing loss,” Charlie said." 

_______________________________________________________


Shouting Won't Help: Why I and 50


 Million Americans Can't Hear You:  


____________________________________


How do you make it Inclusive to all 

those 

who are deaf and hard of 


hearing?:



"However, in order to serve ALL deaf, hard of 

hearing, 

the hearing impaired or people with hearing

 loss 

(whichever terms you choose), all of these

 accessible 

solutions need to be provided, and the Deaf

 and 

hearing impaired should always be placed

 down front 

where they can use their eyes to see to hear

 and the 

audio amplifiers to be picked up by their

 assistive 

devices. Captions should be on the wall or a

 screen for

 those who need to read what is being said." 




_______________________________



“There is still more work to be

 done to 

increase our sensitivity not only 

on a 

conference level, but also in the 

local 

church,” Johnson said. “There are 


thousands of 

people for whom there is no

 access to 



________________________________________________________________________________________



How does Remote CART (real time captioning )




_________________________________________________________________




Hearing Loss in the Church:  


____________________________________________


Church Drop outs:



"About 90 percent of church members and constituents living with any of these forms of hearing loss become church dropouts. The culprit is the not uncommon failure of churches to be "hearing-accessible. " 

Source:  ( http://gbgm-umc.org/disc/sosbook.stm)



_________________________________________


"Perhaps attendance at worship is down because religious services are not audible to a sizable portion of the congregation and, of course, people may elect to not financially contribute to the support of the church if they’re not there."  (Source:  http://hearingdoc.com/hearingnews/could-there-be-a-correlation-between-hearing-loss-and-attendance-at-places-of-worship/)

__________________________________________________________



Opening the Doors: 

_______________________________________

Captioning is the language of many 

who are deaf and hard of hearing. 



_________________________________




What do the deaf and hard of hearing 

use for Communication Access?:


ASL (American Sign Language)  is used by the Culturally Deaf in the USA, CART (real time captioning) or its newer tech version called Remote CART is used by the late deaf, oral deaf and severe to profound hearing loss, ALD's (Assistive Listening Devices) are used by the hard of hearing (mild and moderate hearing loss).  Captioning (CART) can sometimes be used by the culturally Deaf but you need to ask them first.  The Hard of Hearing (mild and moderate) can also use captioning but they usually prefer Audio Loops.  Again, you need to ask them first. Yes, I know I keep saying this through out my blog. We are diverse you see.  We need to break the sound barriers for everyone so they can fully and actively participate and share the Joy of the Gospel to all. 




________________________________________________________________



"For various reasons, 

churches 


have lagged behind wider 

trends in

 society to be inclusive of 

people 

with disabilities." 



______________________________________

The deaf and hard of hearing in other churches advocating for CART (aka real time captioning):  See http://xpressivehandz.blogspot.com/2014/04/ada-violation-at-upcoming-giant-center.html

A church event in a public place was offering sign language interpreter, spanish interpreter and almost didn't provide real time captioning (CART) which is translating spoken English into verbatim English  in real time like interpretation does that allows the majority of the deaf and hard of hearing to be able to PARTICIPATE like the others!  However, in the end, they were granted CART (real time captioning) that allows the same equal and effective communication access that ADA would support in secular society.




_____________________________________________________________________________________

"The ADA gives civil rights protections to individuals with disabilities similar to those provided to individuals on the basis of race, color, sex, national origin, age, and religion. It guarantees equal opportunity for individuals with disabilities in public accommodations, employment, transportation, state and local government services, and telecommunications.(Source: http://adata.org/publication/americans-disabilities-act-faq)

________________________________________

"Religious organizations and
        entities controlled by religious organizations have no
        obligations under the ADA. Even when a religious
        organization carries out activities that would
        otherwise make it a public accommodation, the religious
        organization is exempt from ADA coverage. "

(Source: http://www.justice.gov/crt/foia/readingroom/frequent_requests/ada_tal/tal057.txt)

__________________________________________________________________________________________________




      
         Captioning Shares the Message





__________________________


Communication with those with hearing loss: (a police perspective; note they categorize people with hearing loss into only two groups here –the culturally Deaf who use sign  language and everyone else as Hard of Hearing including even the late deaf and oral deaf. ) The late deaf are a huge group, three times in size then the culturally Deaf.   While this is convenient to categorize people with hearing loss into two groups, technically the majority of people who are deaf on an audiogram are late deaf and not 'hard of hearing' which often means  being mild to moderate hearing loss on an audiogram.  Often deaf on an audiogram  means severe to profound hearing loss (regardless of whether you know sign language or not).  The late deaf typically do not know sign language, but they clump this group into the Hard of Hearing category. Likewise, some people who range from mild, moderate, severe to profound who are culturally Deaf are clumped into the 'culturally Deaf' category regardless of where they are on the spectrum of hearing loss on an audiogram.     In addition it assumes the oral deaf who have a severe or profound hearing loss know sign language when in fact, along with the late deaf, often typically do not know sign language as well and yet are deaf on an audiogram.  None the less, this video helps raise awareness of how to effectively communicate with the culturally Deaf, the late deaf, oral deaf and hard of hearing (mild and moderate hearing loss).   It indicates the need to ASK THEM what is effective communication for them and how the person with hearing loss can help facilitate this.    It indicates the need for sign language as well as auxiliary aids like CART (real time captioning) and looking at their faces and understanding the limitations of lipreading in certain situations for many of them.  It indicates various sign languages being used and not just ASL (American Sign Language).   It indicates behavioral patterns that may seem unusual for a hearing person but normal way of communication for those with hearing loss and deafness, particularly volume of voices and expressive facial, hand and body gestures when communicating.  See  http://www.youtube.com/watch?v=kSKZHZdflmc

____________________________________________



Hearing Loss Association of America The Nation's Voice for people with hearing loss:  See http://www.hearingloss.org

This is an awesome secular organization that advocates effective communication access. I wish there was something similar for Catholics, like a Catholic Hearing loss Ministry so we can have a voice in getting Captioning in some of the churches.
Many of the Catholic Dioceses/Archdioceses have Deaf Ministries, but the majority of them usually focus on the culturally Deaf who use sign language. We need a ministry for the late deaf, oral deaf and hard of hearing that has support services using CART or Remote CART (real time captioning) and audio loops at the Mass and other parts of church life.
___________________________________

The Association of Late Deafened Adults (really anyone deaf of any age onset):  See http://www.alda.org

This is another good secular organization as well and from my understanding, in spite of its name, welcoming to all those who are deaf of any age onset.
________________________________________
Caption Catholic Tidbits:


New American Bible Online:


This is a wonderful resource for understanding Catholicism called Catholic Bridge.  See http://www.catholicbridge.com


Also see One Bread at http://1bread.catholic.org for additional sources on the Catholic Faith.


Catholic Answers:  http://www.catholic.com



______________________________________________________________________

Pray For Us All!

_____________________________________




The Faith Explained 






____________________________





Come Pray the Rosary with others - together Online http://www.comepraytherosary.org

(text guided version offered to follow along)

_________________________________________________________________

" No captions is like no ramp for people in wheelchairs or signs stating ‘people with disabilities are not welcome."  




This applies just as well to real time captioning in churches as well, only the church is ADA exempt.  The ADA law does not apply to churches.  The church and any kind of worship place of any faith is allowed to discriminate and not provide real time captioning for church services.  90 percent of the those with hearing loss do not attend church because the church is not accessible to them.

_________________________________________________________________________
"Accessible meeting space allows 
everyone to participate." 

__________________________________________
"Of all the barriers to full participation and inclusion, the barrier of unexamined attitudes is the most difficult to address," states Ginny Thornburgh, director of the American Association of People with Disabilities' Interfaith Initiative." 
__________________________________________________________
US Bishop Statement:  
'It is essential that all forms of the liturgy be completely accessible to people with disabilities, since these forms are the essence of the spiritual tie that binds the Christian community together' 
(Source:  http://www.disabilityawarenesstraining.com/component/content/article/3/40)
_________________________________________________________________
The purpose of this blog is to raise  Diversity Awareness among those with hearing loss and deafness, and to raise  awareness that many  with hearing loss are being excluded from full participation at the Mass if the church does not have Captioning. Catholics with hearing loss deserve the fullness of their faith.   Does your Diocese/Archdiocese have at least one Mass service in Captioning at a church that one who benefits from it can reasonably travel to in order to fully and actively participate at the Mass? Contact your Diocese/Archdiocese - find it here:    http://www.usccb.org/about/bishops-and-dioceses/all-dioceses.cfm.)

Is your church or Diocese/Archdiocese  inclusive to all those with hearing loss and deafness by providing Real time Captioning, Sign Language and Audio Loops?   If not - Diversity and Inclusion Awareness is needed in order to share the joy of the gospel by applying Universal Communication Access.  It is very important to share the Word of God with everyone.  Let's pray for that!
Prayer of Inclusion: http://www.ncpd.org/ministries-programs/spirituality/prayers

"Ensure that the power of salvation may be shared by all" (John Paul II, Tertio Millennio Adveniente, n. 16). "(Source:  http://www.ncpd.org/views-news-policy/policy/church/bishops/welcome-and-justice)
"Be not Afraid, Open Wide the Gates" - Pope St.  John Paul II   (Source: http://jp2forum.blogspot.com/2013/12/be-not-afraid-resounding-from-1531-to.html)

CC-CaptionCatholic








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