Monday, July 14, 2014

An inclusive church for the deaf and hard of hearing:  Catholics with Hearing Loss: Captioning the Catholic Mass 







              An Inclusive church for the deaf and hard of hearing



Can the Catholic Church be inclusive to ALL  the deaf and hard of  hearing by applying Universal Design for ALL the deaf and hard of hearing in participating at the Mass?


"You pay God a compliment by asking great things of Him." -St. Teresa of Avila




If you are curious like I am, especially as a returnee wondering which church is accessible that you could go to and you have a hearing loss, you might look at websites to see where you can find the Masses that might have Captioning or Audio Loops or Sign Language right?  

Looking at the websites, often you may observe that many of the Catholic Deaf and Hard of Hearing and 'Hearing Impaired'  Ministries, associations, churches, and organizations, Diocese/Archdiocese support services for the deaf and hard of hearing often only focus their service on the 10 percent of the hearing loss and deafness population who use ASL sign language, and so they focus on access via sign language interpreted Mass, RCIA and Bible studies etc.  

While this is wonderful (and necessary),  and they should be provided access to their ASL language as well, it is not addressing the majority of those with hearing loss and deafness who also need support in order to fully, consciously, and actively participate at the Mass and other parts of church life.  


" We have seen rampant confusion on the part of government leaders {and church leaders} who assume that "deaf and hard of hearing"  {compared to capital D Deaf/culturally Deaf} is one group of people whose communication needs center around American Sign Language. This confusion has meant that people with hearing loss are not receiving the services and support that could make their lives better." 
(Source:  http://www.cilww.com/shhh%20page.htm)








"Out of 100 people, 10 have a significant

 hearing problem. Of those 10 people, one

 or two use sign language. The rest do not 

know sign language." 



They rarely list, or provide Captioning at Mass, RCIA and Bible studies etc.,  or realize that real time captioning is used widely, or in high demand in business, entertainment,  and educational settings in the secular world, for the deaf and hard of hearing,  the majority of whom do not know sign language, and ADA laws continue to progress so that the secular world is more and more accessible via Captioning to meet the needs of the growing hearing loss and deafness population.   


Captioning in church services: 







The late deaf, oral deaf and those with severe and profound hearing loss ( and many hard of hearing folks as well) can benefit from Captioning the Mass. Captioning is their language.  This is a very underserved population in the church if communication access like captioning and audio loops are not being provided.  It is any wonder that 90 plus percent of them do not attend church due to lack of access.


"The ADA calls us to be aware of and correct what we do that unnecessarily excludes people"



In spite of the fact that the majority of the physically deaf are fluent in English being their native language,  and do not know sign language, they have little access to the Catholic Mass.   You need to be able to connect, engage, participate and witness the Mass by being on the same page and time with everyone else to be actively part of it and not being a spectator of other's worship experience.  Just reading the Missal solo and not on the same page won't do it.   Besides, many parts of the Mass are not in the Missal (Homily, blessings, prayers of the faithful, announcements).  




"Inclusion begins in places of worship — aren't they supposed to be open and accepting of all who profess their faith?"  (Source:  http://www.disabilityawarenesstraining.com/component/content/article/3/40)



"Having no captions is equivalent to stating 'people with disabilities may not enter.'" - See more at: http://www.disabled-world.com/disability/legal/nad.php#sthash.6aKtVH0e.dpuf




____________________________



 A wheelchair user who also has 

a hearing loss says:


"I honestly feel that hearing impairment is

 much worse than my inability to walk

, because it is so isolating. At least once I get

 to where I’m going, I can enjoy it thoroughly.

Also, I think sometimes people feel that 

having a sign language interpreter satisfies

 the requirement to make a performance

 accessible for the hearing impaired, not

 realizing that the majority of people who lose

 their hearing as they age or from disease do

 not learn sign language"


________________________________________________________________________________

How do you make it Inclusive to all those 

who are deaf and hard of hearing?:



"However, in order to serve ALL deaf, hard of hearing, 

the hearing impaired or people with hearing loss 

(whichever terms you choose), all of these accessible 

solutions need to be provided, and the Deaf and 

hearing impaired should always be placed down front 

where they can use their eyes to see to hear and the 

audio amplifiers to be picked up by their assistive 

devices. Captions should be on the wall or a screen for

 those who need to read what is being said." 



__________________________________________________


Demo of Real time Captioning (aka Communication Access Realtime Translation (CART):  

Go to: http://www.acscaptions.com/subpages/CART.asp  (scroll down to find demo video, 
click on CC)

__________________________________


The forgotten and underserved group of deaf and hard of people:


The late deaf and the late hard of hearing are not only the largest deaf group who typically do not know sign language, they are the fastest growing deaf and hard of hearing population which will double by the year 2030.   Of the 48 million folks (and counting) with hearing loss, only 500,000 know ASL.  The late deaf and late hard of hearing, and those deaf and hard of hearing who grew up with the spoken language have fallen through the cracks, and overlooked when addressing all those who are deaf and hard of hearing.  They have little access to the Catholic Mass.  Their 'effective' communication needs are not being met by the church.


  Who are the late deaf and late hard of hearing?  I use that term loosely as it can mean any one not born deaf as the majority of people who are deaf, acquired the deafness at some point in their lives usually after having some exposure or fluency established of the spoken language although this is not an absolute as many children are being raised orally, especially with the use of cochlear implants or hearing aids that modern society offers that was not available in the past to guide them. Hearing aids are more powerful now then in the past.  Cochlear implants keep improving. 

Don't forget the oral deaf and oral hard of hearing too:  Half of born deaf children are now getting cochlear implants.  They are often in listening and spoken programs (or similar programs making use of residual hearing from hearing aids or cochlear implants).    Many of these people are using CART real time captioning and audio induction loops in group settings.

Don't forget the elders:  Often deafness is associated with aging, injury, diseases, and degeneration,  and so the percentage of these people who are deaf and hard of hearing are higher the older they get in life.  1 in 3 have a hearing loss. This group will double by the year 2030.


Captioning is their native language in verbatim interpretative text format for both the post lingual deaf and hard of hearing as well as those who grew up with the spoken language. Audio loops produce more clarity to sound that are often distorted with the targeted group most benefiting from this are the mild to moderate hearing loss population.  Some of the more severe and profound hearing loss folks find the audio loops not reliable enough so it doesn't work for all those with hearing loss, including the ones wearing hearing aids and cochlear implants. It all depends on the person. 

  Only 1 in 5 people who can benefit from a hearing aid wear them.  Only 1 in 4 adults get a cochlear implant.  There are many valid reasons for it, including costs but other reasons as well.  We are very diverse and complex.  

To be truly inclusive to all those who are deaf and hard of hearing; Captioning, Sign Language and Audio Loops needs to be in place with Universal Access for all in addressing the diversity.

We need an Inclusive Universal  Communication Access model for the deaf and hard of  hearing in church.  That means providing sign language AND Remote CART (real time captioning) AND audio induction loops and having it available in the churches.

Accessibility in the secular world for the deaf and hard of hearing continues to grow with Captioning in various forms and situations be it real time captioning like CART, or voice or speech to text, or closed or open captioning and so forth.    Real time captioning is widely use in community colleges and public universities , business meetings and people watch tv shows, news, and dvd's in captioning.  Movie theaters now offering captioning.  There are captioned phones.   iPads have speech to text software apps, note pad app for typing and SMS texting.  Computers, internet and emails is another communication source.   Real time captioning is growing.



The increasing demands of real time captioning

 and broadcast captioning is driven by two

 forces:




The church is lagging behind and this gap continues to widen as technology continues to create more Universal and accessible designs for those with hearing loss.   So much so, that as a returnee to the church,  I was really surprised to find this wide gap and lack of Universal communication access.   I had no access to the Mass.  There was no real time captioning on screens, nor could I request the service.


"An obvious benefit of closed captioning is to allow everyone to have an equal opportunity to participate in and enjoy the benefits of a service, program or activity." 
(Source:  http://tfwm.com/captions-where-do-we-go-from-hear/)



"CART is kinda like interpretation services or translating.  CART is:  "CART is an acronym that stands for Communication Access Real-time Translation.  By looking at the meaning of each of these words, CART can be defined as; “the ability to use information at the actual time it occurs as it’s converted to another form”.  (Source:  http://www.karasch.com/services.asp?service=16)
Breaking the Sound Barriers in Your Church:  http://www.umdisabilityministries.org/download/soundbarrier.pdf

  
I was in culture shock going from the secular world to the church because communication access was not available in church contrary to what I was used to in secular society.  

There were many unaccessible churches for the deaf and hard of hearing.  I was disturbed to find out that only 4 to 10 percent of the deaf and hard of hearing actually attend church due to lack of accessible communication access.  I almost hit the floor when I found out the church was ADA exempt as well.  Why would any one want to keep people from God's word?  ADA is a good law that promotes access.


"ensure that the power of salvation may be shared by all" (John Paul II, Tertio Millennio Adveniente, n. 16). "(Source:  http://www.ncpd.org/views-news-policy/policy/church/bishops/welcome-and-justice)



I had a hard time going to church with no access and to imagine doing this each Sunday.  Most of us don't think of sitting at a movie theatre without captioning. Likewise I couldn't imagine sitting there in church without real time captioning and to do it each Sunday.  This was a big mouthful for me to soak up in returning to the church.   I was going to have to go to Mass without access to it  as a 'new' Catholic each and every Sunday for years? life?   What did I get myself into I thought?   Was I crazy?   I wanted to return to Catholicism and I wanted access to it as well, not pre ADA,  and culturally Deaf access only as if they ran the Catholic church like a culturally Deaf school that literally was saying and practically shouted out to me in big words:  


'Sign language only provided here, no need to apply (for CART)'.  



"All of us are covered by the ADA. This is not about a preference, a personal choice, or the opinion of one over another or over a majority."  (Source:  http://network.crcna.org/disability-concerns/q-ada-church-and-americans-disabilities-act)



"The majority of people who are deaf and hard of hearing do not know sign language. According to a Johns Hopkins study, more than 48 million people in the United States are deaf or hard of hearing, or a fifth of all Americans. Of these, almost 99 percent lost their hearing or were raised orally–not using sign language–and rely on their residual hearing (aided by hearing aids or cochlear implants), speech reading, and the printed word for communication access. This group of people are greatly aided by text forms of access." (Source:  http://www.captionaccess.com/communication-access-101/?replytocom=41)


"A general rule of thumb is to ask whether people are able to access the facility and, once in, is effective communication happening?"  (Source: https://hsdcstore.com/adasystems.htm)



"The key to deciding what aid or service is needed to communicate effectively is to consider the nature, length, complexity, and context of the communication as well as the person’s normal method(s) of communication." (Source:  http://www.ada.gov/effective-comm.htm)


I wanted to return to an accessible church. I was also used to pro diverse organizations like Hearing Loss Association of America or ALDA, both of whom are very supportive of the hard of hearing, late deaf, oral deaf and hearing impaired by providing Universal Access and they were big on real time captioning and audio induction loops in their meetings and conferences . I got it for classes in college and business meetings too.  The entertainment sector often has captioning.  There are caption phones and CC on movies, DVD's and the local and world news on TV.  TV shows have captioning on it.  My local theatre has captioning.  

It was a culture shock for me when I arrived at the door steps to find out there is no captioning at church.  That was my first hand experience coming home to the church as a returnee.   I couldn't go to their Disability services and request CART (real time captioning) like I was used to doing in business, educational and entertainment sectors of the secular world which provided it for me due to ADA laws.  There wasn't even a Disability ministry for me to apply for this.  Church is exempt from ADA laws so I was out of luck.   They only had a Deaf ministry that only provided sign language.   I was wondering if I lost my mind, returning to a church that is so inaccessible for folks with hearing loss.   Captioning is in high demand in the secular world.



 "It is the duty of all to listen." 



People coming into the church from the secular world are going to have a hard time buying this lack of access at church.  The church needs Universal access for the deaf and hard of hearing, that being real time captioning, sign language and audio induction loops. 

The church is really behind.  



At least I'm not finding very many of these services on many websites or them listing what access is available for all those with hearing loss and deafness and rarely see CART or Remote CART or some form of real time captioning at churches.   There are three times more deaf and hard of hearing who do not know or use sign language and yet there are very few real time captioning services available.   They are probably gone, especially since 90 percent of those with hearing loss do not go to church due to lack of access.



"(Catholics) who want to attend mass and be a part of ministries but do not find a willingness or desire for their inclusion. Often times this is do to ignorance and a lack of awareness." (Source:  http://www.disabilityawarenesstraining.com/component/content/article/3/40)


There are some churches that provide Audio Loops and Assistive Listening Devices for those who are able to make use of them at Mass, RCIA and Bible studies and occasionally you might see an Audio looped confessional.  However, in proportion to the large population of the mild and moderate hearing loss who can benefit from it, there is not nearly enough churches who provide them considering that they would be in each church.  



Accessibility:  

The church is not fully accessible to all those with hearing loss and deafness.  


Real time Captioning, Audio Loops and Sign Language are the three most common communication access in the secular world.  90 percent of the hearing loss population do not know sign language and are being excluded from the fully, conscious, and active participation of the Mass if there are no Captioning or Audio loops, whichever one they are able to use for effective communication access.  Diversity Awareness is needed.  Sensitivity training is needed.  

Captioning in particular is even more rare then Audio loops or Sign Language, and yet so many deaf and hard of hearing can benefit from it.


Inclusivity for all:  See https://www.captionfirst.com/Universal_Design


Not only that, even if the church does have these technology in place like Audio loops or Captioning, you rarely see it listed under their Mass schedule times on the bulletin or website, to indicate if the church or the Mass is accessible for those with hearing loss and deafness so you have no way of knowing if a service is available or not.  

They have Ramps but no 'UNIVERSAL' communication access for those with hearing loss in so many of the churches.


A person in a wheelchair might know that the church's parking lot, ramp, bathroom and adjusted pews might be accessible when they see the Wheelchair access sign on the premise, but can a person with hearing loss know if a particular church is accessible if they do not list the access type on the website or bulletin under Mass schedule times or place the access sign in the lobby of the church indicating that Captioning or Audio loops or ALD's or Sign Language are available?  We need to be mindful of the diversity of those with hearing loss and deafness and the diverse communication access needs.  








"Can we all agree that achieving the 

genuine inclusion of deaf and hearing

 impaired people in society demands 

better than a one-size-fits-all approach to

 communication?"  (Source: http://therebuttal2.com/2010/07/27/1007/ -Tony Abrahams)









Mass for the deaf and hard of hearing:

Often you see Mass schedule times listed in the bulletin, or website,  but I rarely see them indicate if the church has ALD's, audio loops, Captioning.   I really think this is an oversight and lack of awareness.  It is important to raise this awareness in order to make the church truly inclusive and accessible to all.  

For someone with a hearing loss, you don't really know which church is accessible if they are not indicating the access type near the Mass schedule times on websites, bulletins, both at the Parish level and the Diocese/Archdiocese level.     It could be something as simple as:

* Audio loop accessible church or *  ALD's available  or * Captioning (CART/Remote CART) available, contact office for more details or something like that.  Having access information or signs will alert the person that the church is accessible for them.  It will show up on search engines when you google the internet trying to find an accessible church.  This will be appreciated by travelers.   Many of us use other churches, and not just our local church so it helps to indicate the access on websites and bulletins.



Here is an example of a church website that makes it known CART/captioning accommodation is available, listing the service times for it:  

See http://www.salchome.org/content.php?ref=58


20 Percent of Americans have a hearing loss. That is 1 in 5 Americans (1 in 3 after age 65).  We are out there. Is your church accessible to them?  If we are not  in your church, we are still out there waiting for the church to be accessible because 90+ percent of those with any type of hearing loss or deafness do not attend church because it is not accessible to them which means they are unable to fully participate.

"Perhaps attendance at worship is down because religious services are not audible to a sizable portion of the congregation and, of course, people may elect to not financially contribute to the support of the church if they’re not there." 
(Source:  http://hearingdoc.com/hearingnews/could-there-be-a-correlation-between-hearing-loss-and-attendance-at-places-of-worship/)






Do you see us in church?  

 You might not because it is not being
made accessible.  Bringing them home might mean allowing them access to God's word first.  The doors need to be open with accessible communication access that is effective for them and respecting their own social-cultural-linguistic model by providing communication access in real time captioning or audio induction loops, whichever works for them if the spoken language is native to them, or sign language if their social-cultural-linguistic model is American Sign Language.  Forcing people to go from one social-cultural-linguistic model to another is not appropriate too.  Each person should be provided 'effective' communication access.  

Let's pray the doors are opened. Let's pray for sensitivity awareness and diversity awareness too.

_________________________________________


"Statistics tell us that 98% of people with 

hearing loss do not have a church home,


 and the deaf and hard of hearing are the 


fourth largest unreached people group in 


the world." (Source:  http://captioningtheword.com/information.html)

__________________________________________________________


"Listening can be the most active form of participation, demanding effort and attention. Truly, as the scriptures tell us, faith demands hearing, fides ex audit.  "





_____________________________________________________________________________________________________


Catholic Mass for the deaf and hard of hearing:



"For the Deaf or Hard of Hearing:



Arrange for seating the Deaf community in the 

front, near the

 speaker.

Arrange for interpreter or real time captioning 

services at 
least 
two weeks in advance.
Utilize room amplification system or personal 
amplification
 system."
(Source: http://www.dioslc.org/ministries/disabilities/guidelines-for-accommodating-people-with-disabilities)

________________________________________________________



" If a house of worship is not doing CC, 

however, then a major portion of the 

dialogue will not be picked up by the 

whole audience.” 



____________________


"An interpreter/translator uses sign language to translate the spoken word for the hearing impaired.  However, late deafened or hard of hearing people {and oral deaf} would essentially need to learn a whole new language to comprehend the translation.  Other available avenues for communication would be via captioning or Communication Access Real-time Translation (CART). These are critical links in communication for the deaf and hard of hearing." 
My comments:  Not only that, it respects their own social-culture, linguistic framework and language, that being English (usually in the USA although Spanish is growing in popularity). It respects diversity and embraces multiculturalism by honoring the person's own native language and social-culture, linguistic framework in sharing the Joy of the Gospel in churches.  Captioning
is the language of many deaf and hard of hearing people.  Sign language should be provided if that is one's language. But so should Captioning. Its not either/or, its both/and.  Its respecting and celebrating diversity and providing equal communication access for all.
____________________________________________________________

"Of all the barriers to full participation and inclusion, the barrier of unexamined attitudes is the most difficult to address," states Ginny Thornburgh, director of the American Association of People with Disabilities' Interfaith Initiative." 

__________________________________________________________

Experiences of a late deaf 

person:



"It wasn’t until closed 

captioning and CART came 

along that I finally stopped to 

really think about who I am?  

Most recently, CART and closed 

captioning has given me a great

 deal of hope and  brought me 

closer to accepting that I have

 truly found my comfort zone." 


____________________________________________



                "Catholics with disabilities are much

                   more likely to be inactive Catholics

                    than their non-disabled counterparts."

                                             (Source:   http://www.adoremus.org/3-00-Tevington.html#sthash.zuG5hvks.dpuf)




________________________________________________

"CART {real time captioning} is classified as an assistive technology and is considered a reasonable accommodation under the Americans with Disabilities Act. It is a service provided in the academic setting for students with hearing impairment as well as in public settings such as conventions, churches, corporate meetings, funerals, police interrogations, etc. "  
______________________________________



"Of all the barriers to full participation and 

inclusion, the barrier of unexamined attitudes 

is the most difficult to address," states Ginny

 Thornburgh, director of the American 

Association of People with Disabilities' 

Interfaith Initiative." 



__________________________________________________________



“What a gift this will be for them now to have 

the ability to follow along with the Scripture 

readings and Mass prayers right along with us. " 

_______________________________________________________________


"Aldersgate United Methodist Church provides open real time captions during both 9 am and 10:30 am Sunday morning worship services. A CART (computer assisted real time translation) professional sits in worship and silently types everything she hears…"  

________________________________________________________

"From infancy, many children with 

hearing loss depend on hearing aids or 

cochlear implants to receive auditory 

information. Later, the language and 

educational development of children who 

are deaf or hard of hearing depend, in 

part, on access through accommodations 

such as assistive listening devices and 

Computer Assisted Realtime Translation 

(CART).
 (Source: http://www.listeningandspokenlanguage.org/ )





My comment on this link source: This concept easily applies at churches and being able to understand and actively and fully participate at the Catholic Mass. 





_____________________________________________________________________________



"A longtime Bergen County resident and advocate for people 

with hearing loss, Romoff said one of the main obstacles was, 

and often still is, 

“ that the mainstream thinks sign language 

interpreters are what all people with hearing loss 

need, when the vast majority actually need assistive 

listening systems and captioning. So educating about 

needs has to occur first.” 

______________________________________________________________



"Although many churches use sign language to convey

 a sermon to the deaf, others are using technology to

 translate each word so that it appears simultaneously



__________________________________________________________________


"Our church motto is "enlarge your circle of love," and he explains how captioning is one way of accomplishing this."
_______________________________________________________________________________________________________





The estimated 90 percent of those with hearing loss who do not use sign language are often underserved, underfunded, and their needs are often not being met in some of these church ministries and organizations when you consider the size of this population if Captioning and Audio Loops (that are increasingly very common in secular society) are not provided in church services, and other parts of church life.  

______________________________________



"The overwhelming majority of people categorized as deaf by the NHS and SIPP are perfectly fluent speakers of
English (or another spoken language) and did not experience any difficulty hearing until well
into adulthood (e.g., Blanchfield, Dunbar, Feldman, & Gardner, 1999; Mitchell, 2005). As a
consequence, most people who are audiologically deaf do not use sign language."

Source: 

 Draft manuscript accepted for publication in
Sign Language Studies, Volume 6, Number 3, 2006
How Many People Use ASL in the United States?
Why Estimates Need Updating􀀁
Ross E. Mitchell, Travas A. Young, Bellamie Bachleda,
and Michael A. Karchmer
Gallaudet Research Institute
Gallaudet University

___________________________________________________________________




Hearing Loss Web:  http://web.archive.org/web/20140104151703/http://hearinglossweb.com/

Our Mission

"Hard of hearing, late deafened, and oral deaf 

Americans are unrecognized and underserved. They

 have not been successful at educating the public 


concerning their situation or at getting their

 needs met".
(Source: http://web.archive.org/web/20140104151703/http://hearinglossweb.com/)



_________________________________________________________________________________



" The majority of deaf and hard of 

hearing people 

are oral using spoken languages and 


know a little 

or no sign language to benefit from



interpreters, so signed events are still

 not “fully” 

inclusive, especially for those people."  (Source: http://audio-accessibility.com/news/2013/12/importance-of-quality-communication-access-no-waving-hands-or-auto-captioning/)

______________________________________________________



"The hard of hearing {and late deaf and oral deaf}  is 

almost a bigger audience than the {culturally} deaf, 

and they would benefit more from close captioning 

than signing, because many of them don't know sign 

language." 



____________________________________________________________________________________________

"An interpreter/translator uses sign language to translate the spoken word for the hearing impaired.  However, late deafened or hard of hearing people {and oral deaf} would essentially need to learn a whole new language to comprehend the translation.  Other available avenues for communication would be via captioning or Communication Access Real-time Translation (CART). These are critical links in communication for the deaf and hard of hearing." 


______________________________________________________________


"With the growth of broadband access, improved software, and need for  CART in many settings, providers are now offering remote CART services.   The CART provider, located elsewhere, uses a telephone line to pick up   audio and an Internet account to transmit the captions to a computer at the  location where the deaf or hard of hearing individual needs the captions." (Source: http://www.nvrc.org/interpreting-and-transliterating-services/cart/)



___________________________________________________

"While not all deaf or HOH understand ASL, captioning is generally the preferred method of communication for deaf and HOH." 

(Source: http://www.globalcaptionnetwork.com .  )

_______________________________________________



"This much larger group is routinely 

overlooked when 


we look at welcoming people with special

 needs into our 


local communities of faith. While a very 

small number of 


people who are physically deaf may be

 able to use an 

ASL interpreter, most cannot. "


_______________________________________

"Communication Access Realtime Translation (CART) has quickly become one of the most widely used technology services for providing instant transcription of the spoken word into text form. "http://www.alsglobal.net/CART-translation.php

___________________________________________________________




Some one says:  "I honestly feel that hearing impairment is much worse than my inability to walk, because it is so isolating. At least once I get to where I’m going, I can enjoy it thoroughly. Also, I think sometimes people feel that having a sign language interpreter satisfies the requirement to make a performance accessible for the hearing impaired, not realizing that the majority of people who lose their hearing as they age or from disease do not learn sign language" 


____________________________________________________________________________________________



There are three times more deaf people who speak English than ASL (American Sign Language)  so providing CART (captioning) is providing accommodation in their own language of English for this particular population in verbatim.  Makes sense right?  Captioning is the language of many who are deaf and hard of hearing.

_________________________________


That All May Worship:   



________________________________________________________


How does Remote CART (real time captioning )




____________________________________________________________________




"For various reasons, 

churches 


have lagged behind wider 

trends in

 society to be inclusive of 

people 

with disabilities." 



____________________________________________________________________


This technology is primarily used by people who are late-deafened, oral deaf, hard-of-hearing,or have cochlear implants. Culturally deaf individuals also make use of CART in certain situations. " (Source: http://www.everyonecommunicates.org/methods/captioning.html)


____________________________________________________________________


Many people who are Deaf or hard of hearing grew up hearing or were educated in an “oral tradition”, and do not know sign language. Not all Deaf or hard of hearing people find assistive listening devices to be effective. For these individuals, captioning may provide an effective way of communication – seeing what is said. "


____________________________________________________________________



“CART is fast becoming one of the most requested services for late–deafened adults and individuals with little or no sign language acquisition, and it has gained acceptance with and become a preference for many Deaf individuals in schools and workplace settings"  



_______________________________________________________________



"Captioning affects a large part of the US population – whether the deaf, hard of hearing, or those learning English. Within the subset represented by a church’s congregation, traditionally a sizeable number of people are older, and may appreciate the effort shown by the church to caption. Others may wonder why a program is not captioned – why they are excluded from understanding."  (Source:  http://tfwm.com/captions-where-do-we-go-from-hear/)

______________________________________________________________________





According to Johns Hopkins University, there are 48 million deaf and hard-of-hearing people in the United States. Only about 500,000 use American Sign Language as a main mode of communication and typically choose sign language interpreters for their communication access."
____________________________________________________________________


Current statistics of 48 million Americans with a hearing loss (only 500,000 of those with hearing loss use sign language among the born deaf, but the late deaf, oral deaf and hard of hearing typically do not use sign language) This non signing population will double by the year 2030 due to the aging of the Baby Boomers in which that late deaf are the largest deaf population.

___________________________________________________________________






"About 90 percent of church members and constituents

 living with any of these forms of hearing loss become

 church dropouts. The culprit is the not uncommon

 failure of churches to be "hearing-accessible. " 


________________________________________________________





Deafness does not equate to sign language because the majority of the deaf and hard of hearing do not know sign language. Why do I emphasize this?  Because it affects communication access.  Raising awareness of the diverse deaf and hard of hearing population allows more Universal Access for all because 
often the mainstream think all the deaf and hard of hearing use sign language. Universal Access needs to consider Captioning, Sign Language and Audio Loops in order to provide equal and effective communication access for the deaf
and hard of hearing.


_______________________________________________________________




Real Captioning, Sign Language and Audio loops are the three most common communication access used by the deaf and hard of hearing in secular business, education and entertainment settings.  It would be nice if it was also being provided in churches even though the church is ADA exempt.  The hearing loss and deafness population is diverse so all three most common communication   access needs to be in place.

About 10 percent estimated of the hearing loss population benefit from sign language (3 percent are native/primary users and 7 percent estimate are acquired/bilingual for a total estimate of 10 percent ), about 40 to 60 percent estimated of the hearing loss population benefit from Captioning, and about 70 to 80 percent estimated  can benefit from Audio Loops (assuming they are wearing hearing aids and cochlear implants with T coils so this is more in theory). However in reality; 1 in 5 Americans with hearing loss who can benefit from a  hearing aid wear one.  1 in 4 deaf adult Americans who can benefit from a cochlear implant wear a cochlear implant. 25 percent of hearing aids do not have T coils in them.  Many people with more severe and profound hearing losses who do wear hearing aids and do have T coils in them often find the Audio Induction loops not reliable for them or 'strong' enough. Captioning can also cover all these groups and thereby provide effective communication  access.  Technically though any one who can read  (receptive) and speak (expressive) can benefit from Captioning so real time captioning can cover a wide user population within the spectrum of hearing loss.

Think those with mild and moderate hearing loss who most benefit from audio induction loops are wearing  hearing aids?  According to this:


"Only 14% of older adults with hearing loss use

 hearing aids, according to estimates from a 

nationwide survey.

The proportion dropped to fewer than 4% of people

 with mild hearing loss across all age decades and 

to fewer than 5% of adults ages 50 to 59,

 irrespective of the severity of hearing loss."

_______________________________________________________________________________________________________

This {real time captioning} technology is primarily used by people who are late-deafened, oral deaf, hard-of-hearing,or have cochlear implants. Culturally deaf individuals also make use of CART in certain situations. " (Source: http://www.everyonecommunicates.org/methods/captioning.html)



______________________________________________________________


"A growing number of churches, synagogues 

and other places of worship are adopting 

closed captioning for hearing-impaired 

congregants." (Source:  http://www.stenotype.edu/news/stenographer-goes-church/#sthash.5tWSYgfx.dpuf)



________________________________________________________________________________________


"…May the church be the place of God's mercy and love where everyone can feel themselves welcomed, loved, forgiven and encouraged to live according to the good life of the Gospel. And in order to make others feel welcomed, loved, forgiven and encouraged, the church must have open doors so that all might enter. And we must go out of those doors and proclaim the Gospel." -Pope Francis



__________________________________________________________________



What do the deaf and hard of hearing use for 

Communication Access?:


ASL (American Sign Language)  is used by the Culturally Deaf in the USA, CART (real time captioning) or its newer tech version called Remote CART is used by the late deaf, oral deaf and severe to profound hearing loss, ALD's (Assistive Listening Devices) are used by the hard of hearing (mild and moderate hearing loss).  Captioning (CART) can sometimes be used by the culturally Deaf but you need to ask them first.  The Hard of Hearing (mild and moderate) can also use captioning but they usually prefer Audio Loops.  Again, you need to ask them first. Yes, I know I keep saying this through out my blog. We are diverse you see.  We need to break the sound barriers for everyone so they can fully and actively participate and share the Joy of the Gospel to all. 




___________________________________________________________________________

"Aldersgate United Methodist Church provides open real time captions during both 9 am and 10:30 am Sunday morning worship services. A CART (computer assisted real time translation) professional sits in worship and silently types everything she hears…"  

________________________________________________________


Shouting Won't Help: Why I and 50


 Million Americans Can't Hear You:  


____________________________________





Opening the Doors of the Church for the 

deaf and hard of hearing:

___________________________________________________________



"Another set of statistics, however, shows that a full 98 percent of those who are deaf or hearing impaired rarely or never attend church. "  (Source: http://www.stenotype.edu/news/stenographer-goes-church/#sthash.T6dA2OpF.dpuf)




________________________________________________________________________________________





“If we can start to understand how
 people with disabilities respond
 to the church, then we can see
 how other people who might feel
______________________________________



 NOT ALL CAN HEAR IN CHURCH


_________________________________________________________



"If we find that diversity, then we are going to put in the ramp. And we'll put in the elevator and we'll add real-time captioning [for the deaf]." 

________________________________________________________


Audio Loops and Captioning: 



“Like any technology, it works well for some. 

For others that might have more severe or 


profound hearing loss, it wouldn't be as 


beneficial as a captioning type of a 


system,” she said." 


 (Source: http://triblive.com/neighborhoods/alleghenyneighborhoods/alleghenyneighborhoodsmore/5382340-74/hearing-system-church#axzz2rk7enkWi -byTory N. Parrish )


________________________________________________________________

"Assistive listening devices, presently made 
available under ADA regulations, do not serve 
the significant portion of the population who rely
 on visual translations of sounds due to more 
severe hearing losses."  (Source: http://acsbill.wordpress.com/page/3/-by Bill Graham)
_______________________________________________________________________________________________________
 "So many assistive device systems for the hard-of-hearing don't help those of us with severe losses and never seem to dependably work on a regular basis. " (Source:  http://www.ncra.org/Membership/content.cfm?ItemNumber=9129&navItemNumber=11457 - By Pat Gardiner)
_____________________________________________________________
"Technically, my loss is somewhere on the moderate to severe scale. With lip-reading, hearing aids, subtitles, some patience and a few repetitions, I can mostly get by. Just. Induction loops {Audio loops} don’t seem to be much help for my kind of hearing loss."  (Source: http://www.hearingtimes.co.uk/Community/1317/Does%20being%20not%20deaf%20enough%20give%20the%20worst%20of%20both%20worlds)
__________________________________________________________________________________

“I know that assisted listening devices have helped a lot of people enjoy the theater experience, but they don’t work for everyone,” Grasso said.  Grasso saw “Billy Elliot: the musical” last year with her mother, who is also hard of hearing.  Grasso noted, “We used the assisted listening devices, but while the sound was louder, the dialogue was still muffled and slightly delayed.” 

_________________________________________________________________________________________
Myths about the hard of hearing (and 
severe to profound hearing loss, oral 
deaf and late deaf) 
_______________________________________________________________

"The faithful are called to spread the
 word, and captioning makes that more
________________________________________________________________________________________


The Deaf/deaf/HOH need Universal Access:  



"When designing a space or 

planning 

an event, we need to strive for 

universal access—so that all 

members of our communities can 

attend and participate. This means 

that, in addition to ramps and 

elevators, we need assistive 

listening technology like hearing 

loops and captions, and signage 


that makes it clear that the service 

is available. This is a goal that we 

can achieve, but in order to do so, 

we need to change the way we

 think about communication and 

hearing access. "


- See more at: http://agewisekin
gcounty.org/en/134/1/661/Too-Many-People-with-Hearing-Loss-Miss-Out.htm#sthash.em7Uhug6.nW91Nm7I.dpuf

(Source:  http://agewisekingcounty.org/en/134/1/661/Too-Many-People-with-Hearing-Loss-Miss-




___________________________________________________________________________


The ripple effect extends

 beyond those with hearing 


impairment."

(Source: http://thejcr.com/2013/11/15/captioning-during-worship-has-been-miraculous/ -By Barb Harmon)

____________________________________________________________________
"§ 211 §    Every person should be welcomed into the worshiping assembly with respect and care. It was the prophet Isaiah who announced the Lord's message: "For my house shall be called a house of prayer for all peoples."  " (Source:  http://www.archatl.com/ministries/disabilities/livingstones.html)
___________________________________________________________________

"Catholics with disabilities are much more likely to be inactive Catholics than their non-disabled counterparts." 
(Source:   http://www.adoremus.org/3-00-Tevington.html#sthash.zuG5hvks.dpuf)

______________________________________________________


"We want people with any disability to be nourished in the faith and to be able to contribute to the life of the parish community," Benton said. 

(Source: http://www.catholicnews.com/data/stories/cns/1003026.htm)

________________________________________________________________________________________








____________________________________


"Accessible meeting space allows

 everyone to participate." 


____________________________
             
   Captioning the Word:  http://captioningtheword.com

___________________________________________________________



“There are all kinds of accommodations they make for
 other disabilities, but very few accommodations for
 hearing loss,” Charlie said."  (Source: http://lakerlutznews.com/lln/?p=18870)

_______________________________________________________

"The ADA gives civil rights protections to individuals with disabilities similar to those provided to individuals on the basis of race, color, sex, national origin, age, and religion. It guarantees equal opportunity for individuals with disabilities in public accommodations, employment, transportation, state and local government services, and telecommunications." (Source: http://adata.org/publication/americans-disabilities-act-faq)

___________________________________________________________________________________




"One of the choice accommodations to 

use in any setting, but particularly during 

religious ceremonies, is remote CART. It 

is easy to use for most people, it provides

 nearly-verbatim captions on a device as

 ubiquitous as a cell phone, and it allows 

for real-time participation in the services.


___________________________________________________________________________________________






“There is still more work to be done to 

increase our sensitivity not only on a 

conference level, but also in the local 

church,” Johnson said. “There are 

thousands of 

people for whom there is no access to 



____________________________________________________________________________________________



The deaf and hard of hearing in other churches

 advocating for CART (aka real time captioning): 

 See http://xpressivehandz.blogspot.com/2014/04/ada-violation-at-upcoming-giant-center.html

A church event in a public place was offering sign language interpreter, spanish interpreter and almost didn't provide real time captioning (CART) which is translating spoken English into verbatim English  in real time like interpretation does that allows the majority of the deaf and hard of hearing to be able to PARTICIPATE like the others!  However, in the end, they were granted CART (real time captioning) that allows the same equal and effective communication access that ADA would support in secular society.




_____________________________________________________________________________________


"Religious organizations and entities controlled by religious organizations have no obligations under the ADAEven when a religious organization carries out activities that would otherwise make it a public accommodation, the religious organization is exempt from ADA coverage. "

________________________________________________________________________





Hearing Loss in the Church:  


____________________________________________


Church Drop outs:



"About 90 percent of church members and constituents living with any of these forms of hearing loss become church dropouts. The culprit is the not uncommon failure of churches to be "hearing-accessible. " 

Source:  ( http://gbgm-umc.org/disc/sosbook.stm)



______________________________________________________________



This article when talking about those with hearing loss in church states; 


“If they can’t hear where it matters

 most, they go home,” Diephouse said." 



_____________________________________


Providing Effective 

Communication, an 


____________________________________


"The homily is a means of bringing the scriptural message to life in a way that helps the faithful to realize that God's word is present and at work in their everyday lives. It should lead to an understanding of the mystery being celebrated, serve as a summons to mission, and prepare the assembly for the profession of faith, the universal prayer and the Eucharistic liturgy." (Source: http://www.ewtn.com/library/liturgy/zlitur425.htm)

_____________________________________________________________________





“Advances such as texting, video calls and captioned cell phones have opened up new vistas for communication and knowledge acquisition, and has led to a

 generation of students who are DHH who know nothing but the ability to communicate electronically.” The list of hearing access technologies is tremendous

 – Computer Assisted Realtime Translation, hearing loops, C-print, realtime text generation, multi-media storybooks, etc." 



_________________________________________________________________________


"CART is a type of “accommodation” service for people with disabilities.  In function, CART is similar to sign language interpreting for people who are deaf, because it transforms spoken language into a visual format that is appropriate for people with hearing loss.  But CART can be used by the 95% of hard of hearing and deaf people who do not use American Sign Language (ASL) to communicate." 


________________________________



Are They In Your Church?


____________________________________________________________


Using a 'Smart Board' for the deaf and hard of 

hearing with the CART at a church service  -now 

that is being REALLY SMART! :



_______________________________________________________



"Live captioning, also known as computer assisted 

real-time (CART) communications is similar to the

teletext captions you see on TV. It allows people who 

are deaf or hard of hearing to read the captions to

understand what is being said. If they are verbal, it also 

allows them to participate in the conversation."


___________________________________________________________



"On the interpreting front, perhaps no 

other invention has had as profound an 

impact on individuals with hearing loss

 as CART {Captioning in real time}. CART 

technology, which provides 

instantaneous translation of spoken 

word into text, is 

often used in schools, on the job, at 

conferences and in other settings.  "

-(Source : http://www.listeningandspokenlanguage.org/What_We_Mean_by_Communication_Access/#sthash.tB0rUIBf.dpuf -By Kate E. Salvatore, M.D., and John F. Stanton, J.D.)


___________________________________________________________



20% of the US population aged 12 years and older has hearing difficulties severe enough to impact communication according to Hearing Health Foundation.(source; http://hearinghealthfoundation.org/85) which means they are not able to fully participate if the church is not hearing accessible. 

There is a good chance these people are in  your church.  On the other hand, there is a good chance they are not because if there is no Captioning, Sign language and Audio Loops they can't participate and the drop out rates are 90 percent for folks with any form of hearing loss or deafness if they are not given opportunities to fully and actively participate in the life of the church, not to mention those who don't even bother joining a church in the first place if they know it is not accessible.  Captioning, Sign Language and Audio Loops provide wonderful support for the diverse population of those with hearing loss and deafness.  People with hearing loss and deafness are a large unchurched group on the whole.



______________________________________________________





Creating Access and Celebrating Diversity in Hearing Loss and Deafness in the Church: 




__________________________________________________________




Effective Communication for the deaf and 

hard of hearing under ADA:  



_______________________________________________________


" Persons with disabilities must also be

 considered active participants for the 

realization of the project of salvation 


entrusted by the Lord to the Church. This

 calls for the full inclusion of people with

 disabilities in ecclesial life as 

responsible 

subjects, and with a personal vocation to


 fulfill."


 (C. E. Emilia-Romagna 1981).

(SOURCE: http://www.vatican.va/jubilee_2000/jubilevents/jub_disabled_20001203_scheda4_en.htm)

___________________________________________________________________




Captioning (CART or Remote CART) 

is a wonderful way to share the Joy of the Gospel that allows full and active participation for so many with hearing loss.  Listening to an authentic Homily directly from the priest himself in interpretative verbatim of our native English language is active real time participationallowing full attention, focus and engagement in the moment of that important part of the Mass, entering into spiritual communion and unity, sharing, reflecting, and connecting to the message during the Liturgy of the Word with the congregation which prepares you for the Sacrament and to better live a Catholic Christian life.  All parts of the liturgy should be fully accessible and in an authentic way to those with hearing loss and deafness.  The priest becomes an effective witness when sharing it.  Captioning is the language 
of many who are deaf and hard of hearing.



___________________________________________________________________



"It is essential that all forms of the 

liturgy be 

completely accessible to people with 

disabilities, since these forms are the 

essence 

of 

the spiritual tie that binds the Christian 

community together," the bishops 

wrote.

________________________________________________________________



"Accessible meeting space allows

 everyone to participate." 



__________________________________________________


"We want everybody who comes to participate fully. Offering real-time captioning is another attempt at trying to make people feel as comfortable as they can and as at home as they can." 


_____________________________________________________________________________________________



Captioning is a Universal Design Access: 





______________________________________________________________________





"The faithful are called to spread the

 word, and captioning makes that more




________________________________________________________________________________________






         Captioning Shares the Message



__________________________



The Church needs to have Universal 

Communication Access for the deaf and hard

 of hearing: 





" we need assistive listening technology like


 hearing loops and captions,

 and signage that 


makes it clear that the service is available. This 


is a goal that we can 

achieve, but in order 


to do so, we need to change the way we think


 about communication and 

hearing access." 







____________________________________________________________________________




Captioning is the language of many who are

 deaf and hard of hearing



_________________________________



"Churches, you might say, can't afford to build all 

these expensive accommodations for the disabled. 

You have to realize, though, that the lack of these 

services is keeping many people away from Christ." (Source: http://catholicexchange.com/disabilities-and-the-catholic-church -M. LYNN BOOKER)

______________________________________________________________________________________

"ensure that the power of salvation may be shared by all" (John Paul II, Tertio Millennio Adveniente, n. 16). "(Source:  http://www.ncpd.org/views-news-policy/policy/church/bishops/welcome-and-justice)

___________________________________________________________________________




Deaf/deaf and Hard of Hearing Demographics:  



___________________________________






Prayer of the Faithful and getting access

 to that to CONNECT to the Prayer !:  




____________________________________________________________


St. Michael the Archangel prayer:


______________________________________________________________________

Other churches advocating for CART (aka captioning):  See http://xpressivehandz.blogspot.com/2014/04/ada-violation-at-upcoming-giant-center.html


_______________________________________________________________________________



"We depend on captions for television, movies, relay phone calls, live theater and meetings, etc. However, captions are lacking at churches and synagogues. As a result we no longer attend. We feel excluded from the spiritual communities." (Source:  http://xpressivehandz.blogspot.com/2014/07/why-churches-and-synagogues-need-to.html)

_______________________________________________________________________________________
Hearing Loss Association of America – The Nation's Voice for people with hearing loss:  See http://www.hearingloss.org

______________________________________

The Association of Late Deafened Adults (really anyone deaf of any age onset):  See http://www.alda.org

____________________________________
Lord Hear Our Prayer



LIGHT a CANDLE:  http://www.lightingacandle.org


Welcome !    See  http://www.catholicscomehome.org

__________________________________________


Pray For Us All!

100,000 Christians are Killed – PER YEAR  ANNUALLY-  because of their Faith Per Vatican:  See http://www.foxnews.com/world/2013/06/02/vatican-spokesman-claims-100000-christians-killed-annually-because-faith/

Please Pray for Iraq Catholics: http://www.reuters.com/article/2014/07/20/us-iraq-security-christians-idUSKBN0FP0R120140720 and also  others in the Mideast/Africa like Syria, Egypt and Nigeria  etc. 





_____________________________________






Come Pray the Rosary with others - together Online http://www.comepraytherosary.org

(text guided version offered to follow along)

_________________________________________________________________
Without real time captioning as a valid accommodation for the late deaf, oral deaf and hard of hearing it is like saying to them at the church door:   'no ramp for the wheel chair users' , or 'no blacks allowed', or 'no Irish need to apply'.  
_________________________________________________________________
Regarding real time captioning:  "Typically, the service is geared toward the hearing impaired.
"What is driving the demand is the baby boomers," said Fred Sharp, president of the Chartered Shorthand Reporters Association of Ontario."
______________________________________________________________________
"Live captions delivering access to lesson content is particularly beneficial to students impacted by ASD. It provides consistency of message delivery and a single point of focus for the student leading to less distraction, reduced anxiety and improved attention. People with autism often have audio processing issues. " (Source:  http://www.ai-media.tv/magic-live-captions-students-asd/)
_________________________________________________________________________________________________________
"An obvious benefit of closed captioning is to allow everyone to have an equal opportunity to participate in and enjoy the benefits of a service, program or activity." 
______________________________________________________________________________________________________
"Having no captions is equivalent to stating 'people with disabilities may not enter.'" - See more at: http://www.disabled-world.com/disability/legal/nad.php#sthash.6aKtVH0e.dpuf
_________________________________ Why Real Time Captioning?
  • "Sometimes referred to as oral deaf, they are not signing or "Big D" Deaf. They speak English, not American Sign Language because they’ve lost hearing late in life or, if the loss occurred in childhood, they’ve had speech training and wear hearing aids or a cochlear implant
  • Oral deafness is "the invisible disability."  (Source:  http://www.theopencaptioners.com/faqs.php)
____________________________________________
"CART {real time captioning} is classified as an assistive technology and is considered a reasonable accommodation under the Americans with Disabilities Act. It is a service provided in the academic setting for students with hearing impairment as well as in public settings such as conventions, churches, corporate meetings, funerals, police interrogations, etc. "  
______________________________________
"Accessible meeting space allows 
everyone to participate." 
__________________________________________
"Of all the barriers to full participation and inclusion, the barrier of unexamined attitudes is the most difficult to address," states Ginny Thornburgh, director of the American Association of People with Disabilities' Interfaith Initiative." 
__________________________________________________________
"A sobering thought for religious leaders is that 90% of those with a hearing impairment may not attend services due to an inability to hear and participate." (Source:  http://premiervisualvoice.com/index.php/blog/16-blog-8)
_________________________________________________________________________
US Bishop Statement:  
'It is essential that all forms of the liturgy be completely accessible to people with disabilities, since these forms are the essence of the spiritual tie that binds the Christian community together' 
(Source:  http://www.disabilityawarenesstraining.com/component/content/article/3/40)
_________________________________________________________________
The purpose of this blog is to raise  Diversity Awareness among those with hearing loss and deafness, and to raise  awareness that many  with hearing loss are being excluded from full participation at the Mass if the church does not have Captioning. Catholics with hearing loss deserve the fullness of their faith.   Does your Diocese/Archdiocese have at least one Mass service in Captioning at a church that one who benefits from it can reasonably travel to in order to fully and actively participate at the Mass? Contact your Diocese/Archdiocese - find it here:    http://www.usccb.org/about/bishops-and-dioceses/all-dioceses.cfm.)
Is your church or Diocese/Archdiocese  inclusive to all those with hearing loss and deafness by providing Real time Captioning, Sign Language and Audio Loops?   If not - Diversity and Inclusion Awareness is needed in order to share the joy of the gospel by applying Universal Communication Access.  It is very important to share the Word of God with everyone.  Let's pray for that!
Prayer of Inclusion: http://www.ncpd.org/ministries-programs/spirituality/prayers

"Be not Afraid, Open Wide the Gates" - Pope St.  John Paul II   (Source: http://jp2forum.blogspot.com/2013/12/be-not-afraid-resounding-from-1531-to.html)


CC-CaptionCatholic





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